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Sunday, March 11, 2012

5:22 Nausea Express

While this adventure has been fraught with periods of disgust and, pain, and trouble, for the most part it was forewarned, so it’s not like it something new. This roller coaster ride it just a thrill a minute.

But yesterday evening, at 5:22 PM, like a big silver streamliner, the nausea express thundered in to the station. And for the most part, it doesn’t look like it plans to pull out any time soon.

In the last few weeks there have twinges of Nausea, a general feeling of malaise, mostly passing after a brief rest. But this is different, it has lasted 15 hours, not the “ugh, leave me alone, I’m sick” kind, but the more “dang, I feel bad” kind. Not up to running any laps, that’s for sure.

Now maybe Dr Nguyen will feel a little better, as so far my system has not been following the expected rules or acting like he said it should. Doctors hate to be wrong.

I am maintaining the caloric intake, so the weight loss should slow or even stop! I like the thirty-four inch jeans [ wishful thinking, 36 is more like it]; I can be looking pretty darn buff with just a little work.

OK, here’s the plan. Three weeks left, that is 15 days, and that matches the exact number of new Hawaiian shirts I have amassed. So starting Monday, even though there are still 21 shirts in the closet that have not been worn, I will sport a KcS and will give a shout out to the provider and you will know your shirt has served it’s time on the front lines.

Like a rocket sled on rails - Laissez Les Bons Temps Rouler

Saturday, March 10, 2012

Black Slime Lagoon, Again

This morning started out like it was going to be a good day. Slept all night, no issues, got up, fed like a fat man, three cans of smooth goodness down Filmore and I am feeling fine.

I even washed a few dishes, amazing how few dishes get used when you aren’t eating meals. Amazing that there were dishes to do, I mean, after all I’m not eating any meals. Any way, that little chore took but a few scant seconds and I’m left at ends as what to do next; Laundry!

Gather up the load and fire it off and happen to look down and watch as the flood heads towards the far wall. Leaking again? I’m done, time to cut losses, Lowes is fixing to get some of my cash.

For sale: washing machine runs great, minor leak, clean, like new, make offer.

One thing charley has made me realize is that you can’t let the little things get to you, just do what has to be done and quit jacking around.

Morning stats:
Total sleep since yesterday – 9.5 hours
Caloric intake yesterday– 1800
Caloric intake for breakfast today - 1050
Weight – 205

I was recently ask when I learned to speak French, My extent of French is the catch phrase:

Laissez Les Bons Temps Rouler

Friday, March 9, 2012

It’s The Weekend

I was this close - | | -, to having a great Thursday but Filmore, ( that’s the feeding tube), had to get in a last shot. He just up and puked and made a mess of my shirt and stuff. I was headed home; so it was no big deal, but my super soft and sensitive skin didn’t like the acidy nature of his remarks.

Anyway got to the casa, got cleaned up and crashed. Laid down to rest and woke up 5 hours later. Even had visitors but didn’t know it. Hunting buddy came by and checked up on me but I suppose he just didn’t feel it would be right to wake me from my slumber. At least he didn’t clean me out.

I plan on making it an early day today, think I am going to need to restock up in the sleep department. That in itself, is the worst part of this, I’m just so tired all the time.

On a happy note; Cigna insurance sent me back some more money, seems that there is no co-pay or out of pocket expense for dental work when dealing with charley, small blessing but what the hay!, it’s free money baby. Guess I’ll pay some other bill with it.

Among other things this has led me to experience, heart burn, yeah, heart burn. Seems like my swallowing muscles are becoming weak due to under utilization, so stomach crap is oozing up and I now know what heart burn is, not good, that what.

Week Four is history! 57% complete with Chemo and radiation, it’s down hill from here, rocket sled on rails, look out baby here I come.


Today's shirt:



Morning stats:
Total sleep since yesterday – 11 hours
Caloric intake yesterday– 750 ( my bad, but some days you just aren’t hungry.)
Caloric intake for breakfast today - 1050
Weight – 205


Laissez Les Bons Temps Rouler

Thursday, March 8, 2012

Chemo Nadir Day

Seems kind of funny, but its Thursday when the chemo day finally catches up to me. At least the last 3 Thursdays have been pretty much unmitigated disasters, but who’s counting. Today is going to be a good day; I can feel it in my gut, no wait, that’s the feeding tube. Oh well, hope for the best and enjoy the ride.

Pointed out to me last night how sick I am.; sick in the head. It was pointed out that I usually post best after a bad day or bad experience. But crap, those things are a lot more interesting than the fact I sat at my desk and worked on boring things. But I’ll let you in on a secret; if it comes down to it, boring over bad, everyday of the week.

Yesterday, the world’s most unique shirt arrived from my mom. It’s a recycle, wore one time back at one of the very first Adams family reunions. I’m talking about back in the 70’s I think. There is no way to describe this shirt but to take a picture of the recurring theme.



Now you know why it was worn once. But it does have a certain appeal.

Yesterday a mile stone was reached in the course of the treatment plan but another went almost unnoticed. This bad boy can once again fit into 36 inch jeans; this is like a whole new wardrobe is once again available for wear. I knew holding on to those jeans was the right thing to do :)


So on to meet the day, think I’ll go down a couple of cans of breakfast and greet the morning.

Today's shirt:



Misc items:
Svelte looking dude’s weight this morning 209.5
Feeding tube acts like pop off valve when straining a bit to hard.
Also feeding tube is a two way device, if the plug is out, you leak, a lot.


Laissez Les Bons Temps Rouler

Wednesday, March 7, 2012

Hump Day – Big Time Hump Day

Yesser it’s a Wednesday all right. That makes it hump day. The week is almost over; well at least we are over the hump and headed downhill to the weekend. Things are looking up.

Today is not only this weeks hump day, but today is also the hunp day for the treatment protocol. That makes today a massively good hump day. I am over half done with chemo and half done with the x-ray plan. I’m liking it, still have hair, still have no appetite, still kicking charleys butt down the street.

It is a heck of a lot easier when you have the support team I have, from the paid professional charley exterminators to the family and friends that have given me the AWESOME support. I owe all you guys’ big time. Thanks.

As I mentioned at the end of yesterday’s post, there was no photo of the shirt worn for Tuesday. For some reason, the young ladies that drive the gargantuan multimillion dollar charely killing liner accelerator x-ray machine are confused by a camera phone.

They are good people so they get a pass. The photo turned out black, totally black, who knows. Maybe today will be better.

No feeding tube issues yesterday and I fell 100% better about this thing. Still don’t like it, but it’s doing it’s share in the epic adventure so I guess it’s OK.

Another fine night, I did wake up once with a fair amount of pain on my ear, but other than that, no issues. Note to self: If you manage to fall asleep with ear bent double and stay that way for several hours, it will hurt when you awake, and possibly look funky.

Hump day shirt:



Misc stuff:
Svelte looking dude’s weight this morning 211.5
Time to six man games start back up: 05:25:05:42:35

Laissez Les Bons Temps Rouler

Tuesday, March 6, 2012

Trial and Tribulation #37

I hate this one. It’s this damn feeding tube, I hate it, it’s driving me crazy, and truthfully, until it, I wasn’t having all that bad a time.

Sure there where a few down days, and I still hate the dentist, I hate having to gum the food I can’t swallow. And all things considered, this sore throat is a real pain, figurative and literally.

But these are minor T&T’s, compared to this debacle known as a feeding tube. I think I have worn out my welcome to the ER, they charged me last night.

Maybe because I wasn’t as nice and comatose as before, the pain level wasn’t as high and I as able to be my normal caustic sarcastic evil unhappy customer self when dealing with STUPID customer service people. (pet peeve)

In an effort to speed things up, I brought with me the complete set of discharge papers from the previous visit. You would think it would be a place to start, but NO, exact quote here, ”you might have moved, got a new phone number, or driver license since the last visit, and insurance changes”.

Maybe this is why my friend told me I wasn’t allowed to kill anyone. Friend know how I react to this level of stupidity. Even in my prime I couldn't have done that in four days over a weekend.

The reason for the visit, seepage = ok , erupting like Mt Etna, not so much. I’m not much of an educated man, I figure there is about 90% I still don’t know, but common sense dictates that the need for two, not one, two washcloths to contain the molten liquids erupting from around the feeding tube meet the return to base criteria.

Got home after midnight, at the end, a great RN and Doctor finally shed some light on this thing and how to operate it. Seems that what was happening was that the seal wasn’t pulled tight so it was leaking, a lot. I would have thought this might have been mentioned before, like maybe with some post op type instructions? NO, I reviewed those three pages maybe fifty times and this procedure to snug up the tubes is conspicuously absent.

So, after Radiation this morning, I am headed into try to make it in to work, maybe put on a feedng show, charge twenty five cents to see the tube in action. Yoo Wee! There’s money to be made.



No photo today, i'll tell you why tomorrow. Made it to work and back home again. Reload for tomorrow.

DUH - I just realized I could take a picture of the shirt that I wore, not like it gets burned up at the end of the day.




Laissez Les Bons Temps Rouler

Monday, March 5, 2012

Looking Good, Me and my Crew, This is How I Roll

It’s Monday, that means chemo and radiation. When I get done with the chemo session I think a visit to the local watering hole might be in order. At least that is the plan, but time will tell.

For all those who are wondering, how I’m doing, this picture might add a definition for looking good. At least this is how I roll some days.




I’m no longer drinking beer, it’s not going to happen. Stuff by mouth tastes like pig butt, not that I know what a pig butt tastes like but I’m pretty sure I’m close on this one. Tried a slice of pizza yesterday, I couldn’t eat it, the taste was so bad. Faithful minion managed to eat the rest of the pie.

Got a good nights sleep, 1 to 2, then 2 to 5, that’s not too bad for an old toot like me. Only thing jerking me around this morning is the feeding tube, seems like the seepage might slow down or stop, I don’t like it. Having a wet spot on my shirt isn’t all that uncommon for me but usually it’s coffee.

Stand by for pictures of the crew, two good friends, one a riding buddy, the other a drinking buddy. Plus a chance to see the shirt. Well today two of my loyal minions accompanied me to chemo, notice that three shirts did match, what loyal minions I have.



charley’s lament, he’s going to die ,not only are the good sisters of the Oblate after his sorry carcass but today the KcS coalition was reinforced, we now have an ACE, Got an air mobile Hawaiian shirt the print being a collection of the bad guys worst nightmares. Massive, fleet, agile, stealthy, killing machines all piloted by the worlds best RWA.

And on the NBC front, Dr Nguyen hooked me up with some heavy duty antibiotics in the off chance got an infection lingering on. Blood work looks good with my immune system rating looking better than the last 3 weeks test results. Dang this clean living; there just might be soothing to it.


KcS - Kill charley Shirt aka the informal name of the coalition as in Kill charley Shirt coalition.
RWA – roter winged aviator, one who beats into submission a machine designed to tear itself apart if given a chance.
ACE- Air Combat Element, zoomies, flyboys, RWA’s , and the odd wing wiper aka Air Warriors
NBC – Nuclear, biological, Chemical warfare – whatever it takes


Laissez Les Bons Temps Rouler

Sunday, March 4, 2012

Sunday Morning Coming Down

Amazing what two days can mean or do for you. I wasn’t sure I would survive Friday. Felt at least 100% better on Saturday and today, even better. Fixing to grab a bite to eat, seriously, I’m gonna grab a can out of the box, pop the top. And pour it down the feeding tub. I still hate this thing.

A least I know I can get the water and nutritional needs met. Today’s weight, I am at a svelte 210. Undocumented side effects, I got ankles again. And it no longer looks like I am walking around on short stubby fence posts; I now have calf muscle defined and am looking good.

Most likely could use some firming up though, and if I am down 26 lbs why do I still have a gut? That seems wrong, and I here to tell you coach, sit ups or crunches are not happening.

Seems like this needs to be a two part post, just not a lot of trial or tribulation going on right now so no need for pithy posts or sardonic black humor.

Maybe something stupid will happen later and I can blog about that.

Laissez Les Bons Temps Rouler

Saturday, March 3, 2012

Early Bird Get Worm, Film at 7

I knew this would happen, go to bed by 8 and up just after midnight. Not too much to do at 1 AM, check email, read Drudge Report, blog.

1:51 AM, that’s right, earliest blog time for me since the start. But this is going to be a work in progress I’ll be back in a couple of hours with more updates.

Up again at 6:30 or so. Not to much going on in my world except I feel better than yesterday. Today I am moving a little bit faster and with a heck of a lot less pain in the gut. Not home free, won’t be until this abomination is removed, gone, healed and forgotten.

I was wanting to go skydiving this morning but since the winds are up a bit, guess we’ll have to put that off till a later date. Dang, same thing for cleaning up, can’t do it, high winds.

I think for breakfast I’ll a delicious can of vanilla flavored goop, yummy, yummy, good for the yummy.


Was a great Saturday! Hunting buddy from Austin and his bride showed up for a nice visit then the Vitmix king James came over. Now they said getting out would be good for me, so they drug me up to Denton to see a friend up there.

Bruce thinks playing a little poker will be good for entertainment and make me feel tons better. Just one question, how does losing all your money playing poker supposed to make you fell better? Maybe he meant make him fell better.

At least I didn’t lose my money, just the money I started with, thanks guys. I did have a good time. And for the record, pocket aces beat pocket jacks, every time. It was a good game even if the rotten host won all our money.

Tonight I had a another nutritional drink plus a hydrocodone for desert. Looks like I’ll be sleeping well. See you at 1.


Laissez Les Bons Temps Rouler

Friday, March 2, 2012

The Old Brown Mule

You guys need to be on a look out for an old brown mule. This sum-bitch kicked me in the gut. I didn’t see it happen but that would explain the discomfort. Discomfort is a medical term for hurting like hell. Find the mule and I’ll provide the 12ga.

Today I wasn't hitting on all 8 cylinders so I put off blogging and dang near forgot it. Forty-two eleven phone calls checking up on me made me realize I has neglected my readers.

Today was a the final nuke day of the week and end of week 3 so we are at 42.85% completion plus or minus – depending on if I have to make of the two missed nuke sessions.

So week 4 is hump week and cisplatine nadir week as well. 80% of patient complain of side effects by week 4. So far I only suffer general malaise on Thursdays following chemo. I attribute this to taking ginger pills (OTC) 6 times a day to help prevent nausea and elephant attacks. So far so good – no elephants in the neighborhood.

Load of visitors today, all good, Friend Donna came over and help straighten up the man cave. I don’t know why, if you can walk around it or step over it’s not that bad. Nutritional lady brought me a weeks worth of feed for the feed bag, heck she even brought feed bags.

Ron and Laynette stopped in prior to leaving on their latest excursion, just to check on me cause I hadn’t blogged. Bro Paul is in from the hub city where it is cold for a day or so and hunting buddies are headed over tomorrow to make fun of my broke down person. Ha, jokes on them, I’m losing weight and their not.

Hurts too much to cough but gut is getting better. But why do they flavor the nutritional mix I stick in my feeding tube? Unless it’s to taste it in the event of colorful toilet talk, I just don’t know.

Today’s shirt






Laissez Les Bons Temps Rouler

Thursday, March 1, 2012

Bad Day at Black Rock

Woo Wee I hope to whistle. I swear I didn’t want this feeding tube but Doctors orders.
Overall just about the worst thing I have had done to me so far.

I might have mentioned that I possess a super gag reflex. Well step one in the procedure is to pass a thin camera tool up my nose and down the esophagus. Ha – super gag reflex says not no, but hell no.

Third or fourth attempt it’s down but I have made my point, they will think twice before trying that again. Then it’s la la land for the rest of the procedures. In the recovery room I am given all sorts of instructions which I promptly forget as I’m pretty much in la la land.

Then it’s home to rest on the couch and recover, it’s a plan. Seems like hours later I decide to try to assume a vertical position. Lots and lots of pain, and me trying to find a position that is bearable. All I know is pain is present and I am sweating like a fat hog in summer. I seem to be having trouble getting a deep breath and all in all I decide it’s time to re-visit the hospital.

Called my support person, croaked out ER, and in a few short minuets I was back at the hospital. They hung a bag of Mr. Happy and fluids and got me in for x-rays and checked it out. Looks like I got gas. Yep, and not the regular kind, maybe some trapped air is causing the intense discomfort. The sweating is put off on the pain, like a side effect.

Back home, recuperating just fine, have a short customer support session scheduled at 10 then it’s beddy bye for me.

Today I busted the gauges, most especially the attitude one but then Thursday is my Chemo nadir day so what can I say.

Todays shirt, participating in not one but two medical sessions.




Laissez Les Bons Temps Rouler

Express Lane for Big Mac’s

Later this morning the express lane to the gut gets installed. That means the big mac’s don’t have to stop by the choppers before being consigned to the gut. I tried hard to avoid this moment, I hate people cutting on me, I know, knifes slip, accidents happen.

But looks like I was losing to much, to fast. I was thinking I was looking pretty good, I’m down to 212 this morning, we started at 236 which is at least 36 lbs overweight so I can stand to lose a few. Doctor didn’t buy that line of reasoning.

Isn’t this nice; nothing finer than waking in the morning with a touch of nausea. I can only offer apologies to all the young mothers that suffered through morning sickness. You were right, it’s not that easy.

But it’s not unexpected, it’s Thursday and so far Thursday after chemo is my down day. And Friday isn’t anything to write home about. But I have the weekend to look forward to.

Additional up dates and gauges to follow - - -

Laissez Les Bons Temps Rouler